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Wednesday, July 2, 2025
🌼 Welcome to My Blog
Growing Up with Chronic Illness
Hi! My name is Lirio, and I’m a teen living with lupus. I created this blog because I know how confusing, isolating, and overwhelming chronic illness can be, especially when you’re young.
I was diagnosed when I was 13, and everything changed. One day I was just tired. The next, I was missing school, visiting doctors, getting blood tests, and dealing with symptoms I didn’t even have words for. And the worst part? Most people didn’t understand.
That’s why I started this blog: to create a space where we can talk honestly about what it’s like to grow up with a chronic illness, especially autoimmune ones like lupus, juvenile arthritis, celiac disease, and more. Whether you're a kid, a teen, a parent, or just someone curious, I want this blog to help you feel less alone.
Here, you’ll find:
Personal stories about living with lupus
Tips for school, friends, and flare-ups
Simple explanations of complex illnesses
I’m not a doctor, but I am someone who understands what it feels like to be “the sick kid” who doesn’t look sick. I’m learning how to be strong, even when my body feels weak. And I hope this blog helps you feel seen, understood, and supported. If you’re also living with an autoimmune or chronic illness, I’d love to hear your story. Drop a comment or send me a message! If you want to share your story, there will be a form!
Thanks for being here 💜
— Lirio